Archive for tumor

And so it is…

Well after 15 months chemo free and no no growth I had a scan yesterday that didn’t go as I had hoped. The tumors on my vital organs such as liver and lungs haven’t really changed, thank GOD, but the ones in my lower pelvis have shown some advancement. Dr Dan is awesome and has continued to express how impressed and interested he is with my decision to stop chemo and go “natural.” When I came in yesterday he said “so what are you doing? Because you are doing so much better than expected!” I just looked back at your charts and it has been 15 months since we gave you chemo and you have done phenomenally!”
However I have some growth in my pelvis, the concern for the growth is that it could cause a bowel obstruction or problems for my kidneys but that isn’t the case quite yet. Soooooo the next step is for me to either decide to stay on observation and get more regular check ups again or make the move to maybe consider a small dose of chemo. As much as I don’t believe chemo is a great option I find my self slightly fear driven to give it a try. I haven’t decided yet partly because I don’t like to make a decision based on fear. I also have to admit that I knew in my guts that it might go this way. I am very in tune with my body and realized a few weeks ago that I was gaining weight, exhausted all the time, gassy stomach and just felt that something wasn’t quite right. However I wanted to believe it was because I was stressed and playing a lot of hockey. Speaking of hockey, I LOVE it but with a CA 125 count of 200(the highest in a long time) I understand now why I feel like I have to work so hard and then feel so tired afterwards. I love that I feel alive when I play and I also have to think so hard about where to put my feet that I don’t think as much about being “sick”.
I am looking into some other treatment options and have a friend looking at some options as well. I may have to travel to receive treatment but I am willing to find a way to do what it takes.
My friend Marika got into a clinical trial in Boston today! She will begin treatment on the 25th. This is great news as she has been trying to get in since 2009 and hasn’t been able to meet the criteria in the past. Thanks for all the prayers and support for the both of us.

Today is day 2 of a 10 day water only fast. People keep saying how hard that must be and how strong I am. All I can say is fasting is no where as hard as the chemo I was on. I felt weak and sick and all of that on chemo for a lot longer than 10 days. I’m not kidding myself that this won’t test me physically and emotionally however. Mark wants me to spend this time really thinking about how much time I spend thinking, directly or indirectly, on having cancer and what I am going to do with that time once I don’t have to have appointments and tumors and ostomys to think about. I have thought about that some and the first 2 things that have come to mind are building my photography business with Gary and writing a book. I have never wanted to write a book but for some reason I feel compelled to tell the story of ovarian cancer. I was watching TLC yesterday and a woman’s Dr thought she had ovarian cancer but instead she was pregnant and didn’t know it. The statement that really caught my attention was :

Cancer of the ovaries is the most deadly form of female reproductive cancer. By the time its detected its usually too late to be effectively treated.

I have heard that statement in one form or another for the last 10 months and it makes me crazy. Not only is it treatable it can be detected if there was more awareness for it. All we ever hear about breast cancer. i have nothing against breast cancer but why are they the only ones getting attention? All cancer is hard and deserves awareness and attention so my goal is to get some more awareness and options out to those who need to know. Also I would like to let people know about the options there are in the holistic realm as well. I want to talk about the chemicals and junk in our food and how it plays a factor in our health. I haven’t really thought it through a lot on how I want to go about it exactly but it something I am seriously considering.

I am still thinking through other options as well but I am excited at the thought of doing something besides thinking about being sick :)

I’m 2 days into this fast and I’ve already lost 3 lbs. I find it kind of funny honestly. At least I can wear some of the clothes that I don’t usually get to during this time when I’m not worried about the ostomy. jeans and swim suits. wooo hoo. I have had to adjust my wardrobe so much over the last 10 months but I feel better and better about it all the time. I do miss jeans however. SOON….