Help Crystal Fight Ovarian Cancer » CA-125 http://helpcrystal.org Join the fight to cure her from ovarian cancer! Tue, 29 Nov 2011 20:40:46 +0000 en hourly 1 http://wordpress.org/?v= Numbers, Numbers, Numbers http://helpcrystal.org/2011/08/13/numbers-numbers-numbers/ http://helpcrystal.org/2011/08/13/numbers-numbers-numbers/#comments Sat, 13 Aug 2011 18:13:12 +0000 Crystal Fernandez-Seid http://helpcrystal.org/?p=1316 Well I haven’t had my blood drawn in a few months and have been working my butt off and it is starting to show. The stress and the extra hours are not helping me want to eat my normal diet and it is drastically affecting my body. I have gain a large amount of weight in just a couple of weeks and I can tell that I look bloated and my digestion isn’t working quite right. I knew that something didn’t feel quite right and wasn’t surprised yesterday when I found out that my CA-125 had skyrocketed to 322. i am very aware of my body and can tell when it isn’t functioning at its potential. Hopefully I can get through the next 2 weeks and then get my hours cut back to a normal 40 hour week and get on top of my diet. I am considering some other treatment options but haven’t settled on anything specific yet. I might look at Cancer Treatment Centers and see what is an option for an uninsured patient and do some serious thinking. I think getting my diet back on track will make a significant difference.

I am amazed at people. Today both a house keeper and a manager came up and asked how they could pray for me besides the obvious. It took all I had not to cry. The people here really are kind and genuine. I also got a hug from my friend Ann Marie who recently lost her mother in law to cancer so she definitely understands the effects. She is so sweet and recently transferred out of our department because the stress was too much for her and her relationship right now. Sometimes I think I should look into transferring too but I like my co-workers and dealing with guest but it is an exhausting experience at times. I can tell you that God puts you in situations to teach you and I can say when I travel I will be so much more patient with the staff. I have learned patience and skill both in this job. I am excited to go away for a few days this fall. We aren’t sure where yet but we are thinking maybe Vegas in the fall. A good break from life is so valuable for me. I still struggle at times with feeling like a burden at times. I hate that my being sick affects so many people. I am grateful for all the extra support though.

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My Ca-125 has only gone up 3 points but I really want those numbers to go down. http://helpcrystal.org/2011/03/14/my-ca-125-has-only-gone-up-3-points-but-i-really-want-those-numbers-to-go-down/ http://helpcrystal.org/2011/03/14/my-ca-125-has-only-gone-up-3-points-but-i-really-want-those-numbers-to-go-down/#comments Mon, 14 Mar 2011 16:41:17 +0000 Crystal Fernandez-Seid http://helpcrystal.org/?p=1297 My blood results came back yesterday. My Ca-125 has only gone up 3 points but I really want those numbers to go down. I know that a lot of where I’m at in my health has to do with where I am emotionally. Things have been really tough emotionally with all the transitions and I know that has played a part in my not getting “better” I have to believe that it will get better and that things will change for the better eventually. The fear of being on my own and paying my own way can be overwhelming at times. I have applied for a couple jobs and am waiting to hear back. Having some income and a plan will be very helpful. A lot of my stress comes from financial worries but I know that I will figure it all out somehow. I’m trying not to fear and trust as much as I can. My cousin told me something the other day that made me feel good. We were talking about how much crappy stuff I’ve had in my life time and I said that the good stuff has to coming right? Her comment back to me was, ” I would start expecting it” I sure hope she’s right.

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Well my numbers are back down to 129 so that is great news! http://helpcrystal.org/2010/09/21/well-my-numbers-are-back-down-to-129-so-that-is-great-news/ http://helpcrystal.org/2010/09/21/well-my-numbers-are-back-down-to-129-so-that-is-great-news/#comments Tue, 21 Sep 2010 16:04:39 +0000 Crystal Fernandez-Seid http://helpcrystal.org/?p=994 Well my numbers are back down to 129 so that is great news. It was going back up there for a while but it’s back down almost 50 points so I am glad. Today I am on day 2 of a 10 day fast and we are hoping that getting aggressive with fasts ect. we can get the tumors to reduce some for the next CT. I hate fasting but it has good incentives so I’ll stick with it for now. I have had so much support I don’t know what I would do with out all the amazing people in my life.

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I didn’t sleep very well last night. My mind was busy I guess. http://helpcrystal.org/2010/09/20/i-didnt-sleep-very-well-last-night-my-mind-was-busy-i-guess/ http://helpcrystal.org/2010/09/20/i-didnt-sleep-very-well-last-night-my-mind-was-busy-i-guess/#comments Mon, 20 Sep 2010 15:54:59 +0000 Crystal Fernandez-Seid http://helpcrystal.org/?p=992 I didn’t sleep very well last night. My mind was busy I guess. So much on my mind trying to get things planned out for a business and worrying about my friend Marika. The business stuff is coming along and I’m getting so GREAT feedback. Yesterday my best friend Tina and I went to this little hide-away for brunch and ended up talking to the chef about and apprenticeship and helping cater and event for Celine Dion(I LOVE HER!) His wife was told she has 3 months to live in ’06 and he changed her diet ect and she has hung in there. He was so sweet and we visited a lot. He’s a talented chef and had to put a lot on hold to be with his wife but he still gets big accounts. He was super sweet and they ended up comping our meal. They were so sweet and generous and he said he will definitely call me.

I think the other reason I couldn’t sleep was that I hate waiting for blood draw results. I talk to Mark today so we’ll see how it all looks. Everything is going well and I am getting orders for my bakery stuff and my no bean hummus, so fun!

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Wow has my life gotten busy!!! http://helpcrystal.org/2010/09/16/wow-has-my-life-gotten-busy/ http://helpcrystal.org/2010/09/16/wow-has-my-life-gotten-busy/#comments Thu, 16 Sep 2010 23:40:34 +0000 Crystal Fernandez-Seid http://helpcrystal.org/?p=990 Wow has my life gotten busy!!! I have 2 girls on completely different school schedules causing me to run back and forth several times today. In between those times I am baking, baking, baking and cleaning, cleaning, cleaning. I am trying to get this baking business up and going without having my family life suffer. It is going so well though. I have had some great feedback and seem to have some major interest in what I’m doing. I am looking at 2 locations right now and hope to have an idea very very soon of where I will be ending up. i am headed to my brothers next month to check out a couple of similar businesses and get away for a few days.

I am finding myself a little frustrated right now. I am tired of being “the same” however the same is better than worse. I just want to be done with all this stuff. Mark is drawing my blood tomorrow to check some things including my CA-125. Then maybe we can make a plan before the next CT.

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CA-125 Numbers are up to 130 http://helpcrystal.org/2010/07/01/ca-125-numbers-are-up-to-130/ http://helpcrystal.org/2010/07/01/ca-125-numbers-are-up-to-130/#comments Fri, 02 Jul 2010 02:43:54 +0000 Crystal Fernandez-Seid http://helpcrystal.org/?p=828 I switched oncologists. I switched to the son of my old Dr. He is younger and seems a lot more open minded. I had my first apt with him on Tuesday and even though my CA-125 is up again he was very kind and encouraging. He and I discussed chemo and the horrible side affects I had. He told me that the chemo that I was on is the nastiest chemo there is and that he wasn’t surprised that I didn’t handle it well. He said that he understood that I would want to have a quality of life and be a mom instead of suffering especially since there was no guarantee that the chemo would help me. He said that he is fine with me going through the summer doing what I am doing and then running another CT and blood draw. His nurse called me that afternoon and told me that my numbers are up to 130 and that if I wanted to be seen sooner for any symptoms just to call. They didn’t make me feel pressured though which I appreciated. I of course called Mark and he reassured me that as long as I’m under 200 right now that he’s still confident. So my intentions are to get back on my strict strict diet as I have been slacking a little and keep doing what I’m doing. I see Mark on Friday and hopefully I will get on bioidentical hormones in the next few days. I am hopeful for the future.

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My CA-125 numbers are up just slightly, but not enough to do Chemo http://helpcrystal.org/2010/05/07/my-ca-125-numbers-are-up-just-slightly-but-not-enough-to-do-chemo/ http://helpcrystal.org/2010/05/07/my-ca-125-numbers-are-up-just-slightly-but-not-enough-to-do-chemo/#comments Fri, 07 May 2010 17:33:03 +0000 Crystal Fernandez-Seid http://helpcrystal.org/?p=784 Oh my goodness it’s been busy around here. We have been going going going but I am so grateful that my legs are now strong enough to carry me the distance. Tuesday I had an apt with the colorectal surgeon, it was an embarrassing appointment and no matter how many bottoms he’s looked at this is still mine and somehow different. I learned that if the tumors are debulable (removable) then there is a possibility that I can have my ostomy reversed. Ultimately it’s yet to be decided. I have to see if my regular surgeon is willing to do the surgery and that will be based on how the next CT goes. Unfortunately there are so many surgeries for cancer these days that my surgeon was booked until June, however he was able to squeeze me in on the 24th of May. I will have a Cat Scan early that morning and see him at 1 for the results. I am hopeful that there will be significant changes this time and am working to visualize a good outcome. My CA-125 numbers are up just slightly, but not enough to do Chemo my oncologist said. I saw my normal oncologists son this week and I liked him a lot. I’ve seen him twice now when mine has been out of town and am seriously considering switching to him permanently. He’s great, very friendly and seems a little more open to my new method of treatment. He said I wouldn’t do chemo if I was you and that is the first time I have ever heard that from an oncologist. Right now I am being monitored pretty closely and the thyroid seems to be doing better.

On the way to my Dr’s apt Tuesday I called my “chemo buddy” Marika to see how she was I hadn’t heard from her in a while and she had been on my mind a LOT. Once she answered the phone I knew exactly why she hadn’t called. I could “hear” the weakness in her voice and as we talked I learned how rough the last few weeks had actually been. She had been in the hospital on and off for the last 3 weeks and had an allergic reaction to her new chemo. Also she had gotten some devastating news that her liver was in a lot of trouble and other tumors had developed in her lungs and liver as well. Her numbers had jumped dramatically over the period of just one week. We talked about things that only cancer patients can understand and we both ended up in tears. She is an amazing woman and she has been my inspiration and strength many times over this journey! This is her second go with this disease and this was honestly the first time that I had ever seen her this down. It brought back some pretty difficult memories for me of a time when I was in that same place. We both agreed that the phone call was a “God thing” that we both needed. I know that she and I will forever be friends and had we not both been in this journey we would have never met. Mark often tells me to see the good in what has come from this and not the bad and my friendship Marika is one of the best things that has come from my getting sick. There is something special about some one who really “gets it.” I love to call her when I have good news because I know she knows how that really feels and I also know I can call her when I need to be encouraged. I encouraged her to see Dr Mark and yesterday she did. Afterwards we met up for a short visit and I was greeted with the greatest smile and hug that only Marika can give. I could tell that she had seen something new. She told me that she felt much more encouraged and that’s all I want for her. She is trying to get into a clinical trial so we are praying that her liver numbers get better and she regains some strength to continue this journey.

My daughter MeKaty decided that she wanted to do the race for the cure this year so she, Rilynn, my mom and I are all going to do it tomorrow in Boise. We are racing in Marika’s honor and it should be a great day!

Rilynn and I had another hockey game on Wednesday and she scored 3 goals! She was pretty excited. We are really enjoying it.

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My counts were 61. http://helpcrystal.org/2010/02/06/my-counts-were-61/ http://helpcrystal.org/2010/02/06/my-counts-were-61/#comments Sat, 06 Feb 2010 19:28:33 +0000 Crystal Fernandez-Seid http://helpcrystal.org/?p=713 My counts were 61. Not where I hoped to be but still down.

My friend Crystal Luna is in town. I love this girl. She is a blast to be around and an awesome friend. We have been trying to spend time together in between my shifts at the restaurant.

It’s interesting to me that now that I have hair people kind of assume that the journey is over. They expect more from you almost. I am glad to be looking and feeling better but I still visualize myself the way I used to look so when I catch a glimpse of myself in passing I am reminded that I’m not the same.

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I am hoping for the best. http://helpcrystal.org/2010/02/04/i-am-hoping-for-the-best/ http://helpcrystal.org/2010/02/04/i-am-hoping-for-the-best/#comments Fri, 05 Feb 2010 02:25:14 +0000 Crystal Fernandez-Seid http://helpcrystal.org/?p=709 Today was long and tiring but good I think. I walked into the hospital today and was surrounded by all the cancer patients all I could think is how they don’t know any better. I had my blood draw and should have my results tomorrow. My oncologist is so insistent that it has to be the chemo that is helping even though I haven’t had chemo in almost three months. He tried to bully me a little bit into thinking what I am doing could not be working. We’ll see when my numbers come back how things are working. I am hoping for the best.

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Tomorrow is blood draw day. http://helpcrystal.org/2010/02/03/tomorrow-is-blood-draw-day/ http://helpcrystal.org/2010/02/03/tomorrow-is-blood-draw-day/#comments Thu, 04 Feb 2010 04:42:52 +0000 Crystal Fernandez-Seid http://helpcrystal.org/?p=706 Tomorrow is blood draw day. I always feel so much anxiety when these days come around. It is what it is–though–so here goes.

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