I met with Mark yesterday and we went over my scan and he said there is no growth. He doesn’t understand why they are so upset, it’s not like new tumors are exploding all over my body. He sees no need to go bak on chemo. He says once it’s been a year we are going to get a lot more aggressive with my treatment with some extensive fasts ect. I believe in what we are doing and I am active where on chemo I wasn’t and that means a lot to me.
I am sad right now. I just read a caring bridge site for a little girl that I met in the waiting room for CT’s. She is 7 yrs old and she has been battling for a few years now. First of all it was so sad to see this brave little girl the same age as one of my daughters fighting for her life when I know how hard it is on me as a grown person. But when I started reading her journal and saw that her doctors are worried about her weight loss and have advised them to “fatten her up” so she is eating ice cream and high calorie stuff. I wish people knew how badly sugar and milk ect are for growing tumors! Why aren’t Dr’s telling people??? I have gotten so passionate about this stuff but i don’t want to spew it all over people that I don’t know. I wish I could tell everyone how important not eating like crap matters. Every time I walk into the “chemo suite” to get my blood drawn and see the multiple jars of candy and the ladies with cookies walking around it makes me want to scream. The lady with the cookies is just trying to make people cheerful and I get that but when you have cancer a smile and a kind word are a lot more beneficial than cookies and treats.
You need to write a book! Your experience as a survivor will be more beneficial that what the doctors are saying!
We did a lot of diet related things with Sarah because we believe in it too. The doctors just kind of patted us on the back and looked at us with eyes that said you poor foolish people.
I even had one doctor tell me that if I didn’t believe in her treatment for Sarah, that Sarah would never get well. Well we didn’t believe and went ahead with the things that we believed would really give her a chance and to day she is cancer free. Sad to say not very many people want to listen… I have had comments like I could never eat that way… Is all you can do is keep writing in your Journal and telling your story because somewhere out there someone is listening and you may make the difference between life and death for them. It would be nice to know where one could go to learn more about the alternative choices you are making. Education is part of helping people understand the importance of change.
I am not saying that there are not times when traditional treatment is not a necessary part of getting well I just don’t believe they have all the answers. The doctor told me one time that he had about a 3 hour course in nutrition and that I probably knew more about it then him. SAD… to bad that nutrition is not a bigger part of their education.
Praying for you.
Hi Crystal,
I have been following your story for months and hope and pray for you and your family. I am your age with two small kids and so your story is very touching to me. You are an inspiration. I recently had a good friend diagnosed with brain cancer, The tumor is on his brain stem and is inoperable. The doctor’s have virtually no hope and not many options. He was told he can “try” chemo but it could make the tumors grow more rapidly. He decided to try the chemo and had the first treatment yesterday. He wants to live and he wants HOPE. He has a young son whom he does not want to leave. I have been thinking of you and your story and know that you have learned a lot and tried “alternative” methods, i.e…diet etc…
I want to help my friend. I feel the best way to do this would be to educate myself so I can educate him and support him by hopefully finding alternative things we can try so that he may improve. I don’t know where to begin…I was hoping you may have some links to good information, a place to begin.
Thank you in advance for any advice I can get. Don’t stop fighting and I won’t stop praying!